No one should face lupus alone.
Lupus is a disease few people understand. We do. Here you can read the journeys of people who walk in these shoes, find a Lupus Buddy who will stand beside you, and get the kind of help that goes beyond the prescription pad.
Where are you today?
Pick the door that fits. Every path leads to real people, not a phone tree.
Rheum appointment is Tuesday, right? Want to go over your questions tonight?
Weekly check-in · Thursday 7pmA warrior by your side for the whole fight.
Nikkii's mission became to be the person she didn't have: someone who listens without judgment, who understands, and who doesn't expect you to be strong every moment of every day. A Lupus Buddy is that person, matched to you.
- Weekly check-ins by text, call, or coffee. Flare days included.
- Appointment prep so you walk in with your questions written down.
- A journal to start with, because sometimes writing is the first step toward your voice.
- Trained, screened warriors who share experience, never medical advice.
Three ways to stand with someone.
Time, partnership, or dollars. Pick the one you can give today.
You've lived it, or you love someone who has. Be matched as a Buddy, greet at the Café, or wrap gifts in December. Training and support provided.
Sign up to servePractices, hospitals, churches, and local businesses: underwrite journals, Café meetings, or the Gift Wrap. Your name travels with the work.
Explore sponsorshipOne-time or monthly. Secure checkout, instant receipt, tax-deductible to the extent allowed by law.
DonateCome be with us.
Lupus Community Café
Real conversations with people who understand. Come, listen, share as much or as little as you like.
- When
- Third Saturday monthly · 1:00 pm
- Where
- Piedmont Macon North Hospital
400 Charter Blvd, Macon, GA
Tools for the whole fight. Not just the medical one.
Lupus takes a toll on your body, your understanding, and your heart. We organize help the same way.
Manage the disease
- Find a rheumatologist or nephrologistVerified listings, Macon and Metro Atlanta first
- Kidney health and lupus nephritisWhat the labs mean, what to ask
- Prescription and insurance helpAssistance programs that are real and current
- Fatigue, sun, movement, foodEveryday living, from people who live it
Understand what's happening
- Lupus in plain languageTypes, symptoms, treatment, without the jargon
- Questions to bring to your doctorPrintable, one page, by appointment type
- How to read your lab resultsANA, complement, urine protein, explained
- Your rights at work and schoolAccommodations, FMLA, disability basics
Carry it without carrying it alone
- The Lupus Reflection JournalWrite. Feel. Heal. Keep going. Free download or printed copy.
- Explaining lupus to people who don't get itScripts for family, friends, and bosses
- Grieving the life you plannedAcceptance that empowers instead of defeats
- For caregivers and familyLoving someone through it is its own battle
Resource library is being assembled. Content reviewed by a qualified healthcare professional before publication.
“My mission became to be the me I didn't have.”
Nikkii, Founder, Lupus Resource Network of Georgia